People we serve as part of our eldercare work, inspire us! Sohil Parekh and his father are one such set of amazing people. #elderlycare #hellozindagi #caringlikeSonandDaughter with Gaurav Agarwal , Sanjay Ahuja , Anuradha Das Mathur , Jeevanshu Soni , Arihant Jain , Akanksha Prakash Gulia
⚡️ I help unleash digital growth | 🎓 MIT + HBS + BCG I ❤️🩹 ALS Advocate | 🌏 Grateful Immigrant
👇🏼 Does this look like a cutting-edge medical team to you? What I see: - Age ranging from mid-20s to almost 80 - Six different languages spoken - Formal education ranging from no high school to HBS/IIM MBAs - Differences in gender and sexual preference - Variety of temperaments and skills What this team achieved: - Supported an ALS patient at home through end of life - Beat median life expectancy post-diagnosis (>5 years since onset) - No invasive surgeries - No hospital stays or ER visits - Complete conformity with patient and family wishes We did this with: - No medical school degrees - No access to the latest ALS drugs approved by the US FDA - No access to clinical trials for novel treatments - No integrated ALS care centers - No consulting ALS specialists What we did have: - Lots of love for the patient - Complete trust in each other - Openness to trying a variety of therapeutic treatments - Adapting to a constantly changing set of clinical circumstances - Desire to continuously improve our protocols - Timely advice from a select set of kind-hearted medical professionals - Much logistical help from Samarth Life Management Pvt Ltd eldercare - Unending support from ALS Care and Support Foundation, India and - Acceptance that, in the end, we must submit to the will of the Almighty The ALS patient in question was my mother Nita Parekh. She passed peacefully at our home in Pune, India on May 5, 2024. With immediate effect - I'm changing call signs from #alscaregiver to #alsadvocate #diversity #team #caregiving #ALS #India (picture left to right: our nurse Savita, cook Harish, my Dad Nainish Parekh, me, and our caregiver Manju) ________________ Enjoyed this? 🔁 Repost, 💬 Comment or 👍🏽 Like ➕ For more, follow Sohil Parekh ⚡️ I help unleash digital growth at Deep Sea Strategy